Our mission is to facilitate patient-led and patient-involved research into Long COVID and associated conditions while also following rigorous and sound research methodology, and to advocate for policies that enable patients, particularly the most marginalized, to survive and make meaningful contributions towards science, policy, and their well-being.


We aim to build capacity as an organization to fund projects that improve the lives of Long COVID patients.

We aim to build a collaborative where Long COVID and other chronic illness patients can find projects that align with their expertise and capacity to work, develop strong partnerships with other research teams, public health initiatives, and allied organizations, as well as be meaningfully compensated for their contributions to science and policy.

We aim to develop sustainable patient-led research as a collaborative governance model and create a higher standard of patient-involvement best practices with partner organizations.